You could be forgiven for thinking that on getting home, mine and Big Bro’s life would something akin to being normal. For a while I thought the same. I could finally start planning beyond a day in advance, there would be less things to carry around and more freedom in general. But that dream was [...]
A Slice of Normal Pie
January 28, 2013 by · 9 Comments
When I got home from hospital with Big Bro for the first time, it was like re-learning the fundamentals of caring for a newborn, all over again. Although he was by that time, four months old and I had been by his side, every single day, I hadn’t been party to the patterns and routine, [...]
The Eight Hour Operation
October 25, 2012 by · 16 Comments
It was liberating having Big Bro back in Exeter. After weeks of staying in an environment that was totally alien to me, I could finally recuperate in my own surroundings and make myself stronger for the coming months. Big Bro was thriving in his new surroundings. Although he now had a colostomy bag and the challenges that [...]
The Absent Father
September 11, 2012 by · 21 Comments
Today my eldest son turned three years old. When I think about the fact that he has got to this age, I swell with the pride that only a mother who has had a poorly child can feel. Big Brother was diagnosed with Oesophageal Atresia when he was born. This meant that he couldn’t swallow, because his Oesophagus ended [...]
Admitting You Need Help.
July 31, 2012 by · 1 Comment
I’ll let you into a secret about myself. I don’t like leaving the house. I don’t even like popping to the corner shop for milk. It’s like a deep rooted fear and I get anxious at the thought of just stepping out of my front door. It’s completely irrational. I tell myself this on a [...]
